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Mission: Welcome to VACTERLS Association Family Network. The purpose of this organization is to connect VACTERLS/VATER families with those who have been there, done that. By sharing our stories, advice, support, and love, we hope to create a network of those who have survived VACTERLS and can help others make it through. We do not seek to advise on medical issues, however we will share our medical journeys with others.
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This group was started by myself, Jan Sweeney, and Arlene Lambert. We are both parents of young children affected by VACTERLS. Please read our stories. We would invite all people affected by VACTERLS to join our group. Right now we are on the ground floor, however we have big hopes, and as many of us know hope can do a lot. We hope to get our own domain name on the internet soon. We hope to become a non-profit organization, and we hope to set up a fund to assist those who must travel for medical attention.
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